PMC:7537094 / 20174-22398 JSONTXT

{"project":"LitCovid-PD-CLO","denotations":[{"id":"T39854","span":{"begin":21,"end":22},"obj":"http://purl.obolibrary.org/obo/CLO_0001020"},{"id":"T74693","span":{"begin":117,"end":118},"obj":"http://purl.obolibrary.org/obo/CLO_0001020"},{"id":"T13438","span":{"begin":369,"end":381},"obj":"http://purl.obolibrary.org/obo/NCBITaxon_9606"},{"id":"T32376","span":{"begin":1009,"end":1012},"obj":"http://purl.obolibrary.org/obo/CLO_0051582"},{"id":"T63936","span":{"begin":1238,"end":1245},"obj":"http://purl.obolibrary.org/obo/UBERON_0000982"},{"id":"T54281","span":{"begin":1238,"end":1245},"obj":"http://purl.obolibrary.org/obo/UBERON_0004905"},{"id":"T27719","span":{"begin":1560,"end":1563},"obj":"http://purl.obolibrary.org/obo/CLO_0051582"},{"id":"T12009","span":{"begin":2021,"end":2029},"obj":"http://purl.obolibrary.org/obo/CLO_0001658"}],"text":"3 PROVIDING CARE AS A TWO‐WAY PROCESS\nIt is important for this paper’s approach that healthcare is understood to be a two‐way effort that involves people caring and people being cared for. This relationship between the “carer” and the “cared for” involves both parties thinking about the situation and making decisions together. The process stems from the autonomy of human beings or their right to self‐determination. Patients in healthcare settings, as well as non‐patients who are the intended beneficiaries of public health initiatives, simultaneously have the status of being cared for and being “carers.” They are carers in the sense of having to be decision‐makers insofar as the care that they need and deserve is concerned. By virtue of their being carers, they need to have access to information that may initially be available only to those who are regarded as having the primary role as carers (healthcare professionals and authorities). This means that information understandable to carers also has to be rendered understandable to the cared for. This is important in the context of public health and health promotion where healthcare providers may need reminding that dispensing care and information is an effort that they jointly carry out with the recipients. The pandemic emergency does not necessarily clothe them with authority to perform their tasks with arrogance and disdain for the ignorance and lack of medical sophistication that they may occasionally encounter in the cared for.\nThis also means that the perspective of the cared for has to be understood – and respected – by the carer. In this way, the cared for is afforded an opportunity to exercise self‐determination. Strictly speaking, the cared for does not shift perspectives. What happens is that the perspective of the cared for is taken into consideration by the healthcare provider because the process of caring, on this account, is being done by the carer on behalf of the cared for. The carer and the cared for are partners in the activity. The relationship between them is not hierarchical but complementary, as healthcare providers or researchers need to be reminded when seeking informed consent from patients or research subjects."}

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