PMC:5917327 / 2241-4960
Annnotations
{"target":"https://pubannotation.org/docs/sourcedb/PMC/sourceid/5917327","sourcedb":"PMC","sourceid":"5917327","source_url":"https://www.ncbi.nlm.nih.gov/pmc/5917327","text":"Introduction\nChronically ill patients will face changes in care at some point in the course of their disease. Patients with Parkinson’s disease (PD), for example, suffer from motor symptoms and a wide variety of non-motor symptoms [1]. The fluctuating expression of symptoms and progression of the disease frequently force PD patients to adapt to new impairments and disabilities [1]. Some of these disabilities will necessitate changes in care: transfers of patients between different levels of (non) professional care within the same setting or between different (healthcare) settings [2,3].\nChanges in care may include changes in domestic help, the purchase of a tool or modification of pharmacotherapy [3]. So far, however, research has mainly focused on transitional care from one healthcare setting to another or to home [3–7]. Studies among patients with high prevalent chronic conditions such as heart failure, chronic obstructive pulmonary disease (COPD) and cancer show that patients may feel they lack control when discharged from a hospital. Moreover, they may feel insecure, unprepared, inadequately guided and not involved in care-taking decisions at those moments [6,7].\nOffering support to prepare patients to handle changes in care can contribute to patients’ well-being [8]. The insight is growing that patients’ healthcare needs to deal with the challenges of chronic disease are defined not only by the disease itself but also – and perhaps even more so – by patients’ ability to cope [9]. General practitioners (GPs) are the most appropriate healthcare providers to offer medical and mental support to patients with prevalent conditions such as COPD and diabetes mellitus (DM) who experience changes in care, as they are already used to provide disease-specific care to these patients and are familiar with patients’ context [10,11].\nFor community-dwelling patients with a less prevalent disease such as PD, it is not clear who should be offering support in handling care changes, as the neurologist offers disease-specific care, while the GP has more expertise in offering support related to patients’ circumstances [2,14]. Moreover, patients with PD face extra difficulties in handling changes in care. Disease-related factors such as the diminishing ability to take the initiative and to mentally adapt challenge patients in their ability to cope [12,13]. To offer PD patients tailored support, more insight is necessary into the changes in care PD patients’ encounter and into their coping with these changes. In this study we, therefore, ask ourselves how community-dwelling PD patients, who mostly have mild-staged disease, cope with the care changes they face in the course of their disease.","divisions":[{"label":"title","span":{"begin":0,"end":12}},{"label":"p","span":{"begin":13,"end":593}},{"label":"p","span":{"begin":594,"end":1185}},{"label":"p","span":{"begin":1186,"end":1854}}],"tracks":[{"project":"TEST0","denotations":[{"id":"29569501-122-127-12007","span":{"begin":232,"end":233},"obj":"[\"24978368\"]"},{"id":"29569501-145-150-12008","span":{"begin":381,"end":382},"obj":"[\"24978368\"]"},{"id":"29569501-203-208-12009","span":{"begin":588,"end":589},"obj":"[\"24262173\"]"},{"id":"29569501-205-210-12010","span":{"begin":590,"end":591},"obj":"[\"12657079\"]"},{"id":"29569501-113-118-12011","span":{"begin":707,"end":708},"obj":"[\"12657079\"]"},{"id":"29569501-119-124-12012","span":{"begin":830,"end":831},"obj":"[\"12657079\"]"},{"id":"29569501-126-131-12013","span":{"begin":1180,"end":1181},"obj":"[\"24831061\"]"},{"id":"29569501-128-133-12014","span":{"begin":1182,"end":1183},"obj":"[\"25982302\"]"},{"id":"29569501-103-108-12015","span":{"begin":1289,"end":1290},"obj":"[\"16896392\"]"},{"id":"29569501-213-218-12016","span":{"begin":1506,"end":1507},"obj":"[\"25470421\"]"},{"id":"29569501-235-241-12017","span":{"begin":1847,"end":1849},"obj":"[\"25990339\"]"},{"id":"29569501-230-236-12018","span":{"begin":1850,"end":1852},"obj":"[\"17076359\"]"},{"id":"29569501-230-235-12019","span":{"begin":2139,"end":2140},"obj":"[\"24262173\"]"},{"id":"29569501-232-238-12020","span":{"begin":2141,"end":2143},"obj":"[\"19597165\"]"},{"id":"29569501-146-152-12021","span":{"begin":2372,"end":2374},"obj":"[\"25787145\"]"},{"id":"29569501-149-155-12022","span":{"begin":2375,"end":2377},"obj":"[\"29077803\"]"}],"attributes":[{"subj":"29569501-122-127-12007","pred":"source","obj":"TEST0"},{"subj":"29569501-145-150-12008","pred":"source","obj":"TEST0"},{"subj":"29569501-203-208-12009","pred":"source","obj":"TEST0"},{"subj":"29569501-205-210-12010","pred":"source","obj":"TEST0"},{"subj":"29569501-113-118-12011","pred":"source","obj":"TEST0"},{"subj":"29569501-119-124-12012","pred":"source","obj":"TEST0"},{"subj":"29569501-126-131-12013","pred":"source","obj":"TEST0"},{"subj":"29569501-128-133-12014","pred":"source","obj":"TEST0"},{"subj":"29569501-103-108-12015","pred":"source","obj":"TEST0"},{"subj":"29569501-213-218-12016","pred":"source","obj":"TEST0"},{"subj":"29569501-235-241-12017","pred":"source","obj":"TEST0"},{"subj":"29569501-230-236-12018","pred":"source","obj":"TEST0"},{"subj":"29569501-230-235-12019","pred":"source","obj":"TEST0"},{"subj":"29569501-232-238-12020","pred":"source","obj":"TEST0"},{"subj":"29569501-146-152-12021","pred":"source","obj":"TEST0"},{"subj":"29569501-149-155-12022","pred":"source","obj":"TEST0"}]},{"project":"0_colil","denotations":[{"id":"29569501-24978368-12007","span":{"begin":232,"end":233},"obj":"24978368"},{"id":"29569501-24978368-12008","span":{"begin":381,"end":382},"obj":"24978368"},{"id":"29569501-24262173-12009","span":{"begin":588,"end":589},"obj":"24262173"},{"id":"29569501-12657079-12010","span":{"begin":590,"end":591},"obj":"12657079"},{"id":"29569501-12657079-12011","span":{"begin":707,"end":708},"obj":"12657079"},{"id":"29569501-12657079-12012","span":{"begin":830,"end":831},"obj":"12657079"},{"id":"29569501-24831061-12013","span":{"begin":1180,"end":1181},"obj":"24831061"},{"id":"29569501-25982302-12014","span":{"begin":1182,"end":1183},"obj":"25982302"},{"id":"29569501-16896392-12015","span":{"begin":1289,"end":1290},"obj":"16896392"},{"id":"29569501-25470421-12016","span":{"begin":1506,"end":1507},"obj":"25470421"},{"id":"29569501-25990339-12017","span":{"begin":1847,"end":1849},"obj":"25990339"},{"id":"29569501-17076359-12018","span":{"begin":1850,"end":1852},"obj":"17076359"},{"id":"29569501-24262173-12019","span":{"begin":2139,"end":2140},"obj":"24262173"},{"id":"29569501-19597165-12020","span":{"begin":2141,"end":2143},"obj":"19597165"},{"id":"29569501-25787145-12021","span":{"begin":2372,"end":2374},"obj":"25787145"},{"id":"29569501-29077803-12022","span":{"begin":2375,"end":2377},"obj":"29077803"}],"attributes":[{"subj":"29569501-24978368-12007","pred":"source","obj":"0_colil"},{"subj":"29569501-24978368-12008","pred":"source","obj":"0_colil"},{"subj":"29569501-24262173-12009","pred":"source","obj":"0_colil"},{"subj":"29569501-12657079-12010","pred":"source","obj":"0_colil"},{"subj":"29569501-12657079-12011","pred":"source","obj":"0_colil"},{"subj":"29569501-12657079-12012","pred":"source","obj":"0_colil"},{"subj":"29569501-24831061-12013","pred":"source","obj":"0_colil"},{"subj":"29569501-25982302-12014","pred":"source","obj":"0_colil"},{"subj":"29569501-16896392-12015","pred":"source","obj":"0_colil"},{"subj":"29569501-25470421-12016","pred":"source","obj":"0_colil"},{"subj":"29569501-25990339-12017","pred":"source","obj":"0_colil"},{"subj":"29569501-17076359-12018","pred":"source","obj":"0_colil"},{"subj":"29569501-24262173-12019","pred":"source","obj":"0_colil"},{"subj":"29569501-19597165-12020","pred":"source","obj":"0_colil"},{"subj":"29569501-25787145-12021","pred":"source","obj":"0_colil"},{"subj":"29569501-29077803-12022","pred":"source","obj":"0_colil"}]},{"project":"2_test","denotations":[{"id":"29569501-24978368-29033503","span":{"begin":232,"end":233},"obj":"24978368"},{"id":"29569501-24978368-29033504","span":{"begin":381,"end":382},"obj":"24978368"},{"id":"29569501-24262173-29033505","span":{"begin":588,"end":589},"obj":"24262173"},{"id":"29569501-12657079-29033506","span":{"begin":590,"end":591},"obj":"12657079"},{"id":"29569501-12657079-29033507","span":{"begin":707,"end":708},"obj":"12657079"},{"id":"29569501-12657079-29033508","span":{"begin":830,"end":831},"obj":"12657079"},{"id":"29569501-24831061-29033509","span":{"begin":1180,"end":1181},"obj":"24831061"},{"id":"29569501-25982302-29033510","span":{"begin":1182,"end":1183},"obj":"25982302"},{"id":"29569501-16896392-29033511","span":{"begin":1289,"end":1290},"obj":"16896392"},{"id":"29569501-25470421-29033512","span":{"begin":1506,"end":1507},"obj":"25470421"},{"id":"29569501-25990339-29033513","span":{"begin":1847,"end":1849},"obj":"25990339"},{"id":"29569501-17076359-29033514","span":{"begin":1850,"end":1852},"obj":"17076359"},{"id":"29569501-24262173-29033515","span":{"begin":2139,"end":2140},"obj":"24262173"},{"id":"29569501-19597165-29033516","span":{"begin":2141,"end":2143},"obj":"19597165"},{"id":"29569501-25787145-29033517","span":{"begin":2372,"end":2374},"obj":"25787145"},{"id":"29569501-29077803-29033518","span":{"begin":2375,"end":2377},"obj":"29077803"}],"attributes":[{"subj":"29569501-24978368-29033503","pred":"source","obj":"2_test"},{"subj":"29569501-24978368-29033504","pred":"source","obj":"2_test"},{"subj":"29569501-24262173-29033505","pred":"source","obj":"2_test"},{"subj":"29569501-12657079-29033506","pred":"source","obj":"2_test"},{"subj":"29569501-12657079-29033507","pred":"source","obj":"2_test"},{"subj":"29569501-12657079-29033508","pred":"source","obj":"2_test"},{"subj":"29569501-24831061-29033509","pred":"source","obj":"2_test"},{"subj":"29569501-25982302-29033510","pred":"source","obj":"2_test"},{"subj":"29569501-16896392-29033511","pred":"source","obj":"2_test"},{"subj":"29569501-25470421-29033512","pred":"source","obj":"2_test"},{"subj":"29569501-25990339-29033513","pred":"source","obj":"2_test"},{"subj":"29569501-17076359-29033514","pred":"source","obj":"2_test"},{"subj":"29569501-24262173-29033515","pred":"source","obj":"2_test"},{"subj":"29569501-19597165-29033516","pred":"source","obj":"2_test"},{"subj":"29569501-25787145-29033517","pred":"source","obj":"2_test"},{"subj":"29569501-29077803-29033518","pred":"source","obj":"2_test"}]},{"project":"MyTest","denotations":[{"id":"29569501-24978368-29033503","span":{"begin":232,"end":233},"obj":"24978368"},{"id":"29569501-24978368-29033504","span":{"begin":381,"end":382},"obj":"24978368"},{"id":"29569501-24262173-29033505","span":{"begin":588,"end":589},"obj":"24262173"},{"id":"29569501-12657079-29033506","span":{"begin":590,"end":591},"obj":"12657079"},{"id":"29569501-12657079-29033507","span":{"begin":707,"end":708},"obj":"12657079"},{"id":"29569501-12657079-29033508","span":{"begin":830,"end":831},"obj":"12657079"},{"id":"29569501-24831061-29033509","span":{"begin":1180,"end":1181},"obj":"24831061"},{"id":"29569501-25982302-29033510","span":{"begin":1182,"end":1183},"obj":"25982302"},{"id":"29569501-16896392-29033511","span":{"begin":1289,"end":1290},"obj":"16896392"},{"id":"29569501-25470421-29033512","span":{"begin":1506,"end":1507},"obj":"25470421"},{"id":"29569501-25990339-29033513","span":{"begin":1847,"end":1849},"obj":"25990339"},{"id":"29569501-17076359-29033514","span":{"begin":1850,"end":1852},"obj":"17076359"},{"id":"29569501-24262173-29033515","span":{"begin":2139,"end":2140},"obj":"24262173"},{"id":"29569501-19597165-29033516","span":{"begin":2141,"end":2143},"obj":"19597165"},{"id":"29569501-25787145-29033517","span":{"begin":2372,"end":2374},"obj":"25787145"},{"id":"29569501-29077803-29033518","span":{"begin":2375,"end":2377},"obj":"29077803"}],"namespaces":[{"prefix":"_base","uri":"https://www.uniprot.org/uniprot/testbase"},{"prefix":"UniProtKB","uri":"https://www.uniprot.org/uniprot/"},{"prefix":"uniprot","uri":"https://www.uniprot.org/uniprotkb/"}],"attributes":[{"subj":"29569501-24978368-29033503","pred":"source","obj":"MyTest"},{"subj":"29569501-24978368-29033504","pred":"source","obj":"MyTest"},{"subj":"29569501-24262173-29033505","pred":"source","obj":"MyTest"},{"subj":"29569501-12657079-29033506","pred":"source","obj":"MyTest"},{"subj":"29569501-12657079-29033507","pred":"source","obj":"MyTest"},{"subj":"29569501-12657079-29033508","pred":"source","obj":"MyTest"},{"subj":"29569501-24831061-29033509","pred":"source","obj":"MyTest"},{"subj":"29569501-25982302-29033510","pred":"source","obj":"MyTest"},{"subj":"29569501-16896392-29033511","pred":"source","obj":"MyTest"},{"subj":"29569501-25470421-29033512","pred":"source","obj":"MyTest"},{"subj":"29569501-25990339-29033513","pred":"source","obj":"MyTest"},{"subj":"29569501-17076359-29033514","pred":"source","obj":"MyTest"},{"subj":"29569501-24262173-29033515","pred":"source","obj":"MyTest"},{"subj":"29569501-19597165-29033516","pred":"source","obj":"MyTest"},{"subj":"29569501-25787145-29033517","pred":"source","obj":"MyTest"},{"subj":"29569501-29077803-29033518","pred":"source","obj":"MyTest"}]}],"config":{"attribute types":[{"pred":"source","value type":"selection","values":[{"id":"TEST0","color":"#94ec93","default":true},{"id":"0_colil","color":"#ec93ae"},{"id":"2_test","color":"#93c8ec"},{"id":"MyTest","color":"#e2ec93"}]}]}}