PubMed:10951921 JSONTXT

{"target":"http://pubannotation.org/docs/sourcedb/PubMed/sourceid/10951921","sourcedb":"PubMed","sourceid":"10951921","text":"Genetics services in a social, ethical and policy context: a collaboration between consumers and providers.\nWe report a unique, collaborative effort by users and providers of genetic services to arrive at outlines for optimal ethics and clinical practice. Using focus groups of consumers (users) and providers (held separately), a provider-consumer project team developed 1) a consumer wish list, 2) an experientially based ethical overview of situations arising in practice, and 3) detailed suggestions for consumer-provider interactions in clinical settings. Consumers were primarily interested in accurate information, respect for persons, a smoothly functioning team, with the consumer as an equal member of the team, family integrity, and providers who knew the limits of their knowledge and were willing to refer. \"Non-directive\" counselling and privacy were not major issues in consumer focus groups; some thought providers should openly state their own opinions. Providers had a rather different list of priorities. Books and papers on clinical ethics usually originate from bioethicists and physicians. This pilot project is unique in including consumers and providers equally.","tracks":[{"project":"PMID_GLOBAL","denotations":[{"id":"T1","span":{"begin":0,"end":107},"obj":"Sentence"},{"id":"T2","span":{"begin":108,"end":255},"obj":"Sentence"},{"id":"T3","span":{"begin":256,"end":560},"obj":"Sentence"},{"id":"T4","span":{"begin":561,"end":970},"obj":"Sentence"},{"id":"T5","span":{"begin":971,"end":1023},"obj":"Sentence"},{"id":"T6","span":{"begin":1024,"end":1111},"obj":"Sentence"},{"id":"T7","span":{"begin":1112,"end":1186},"obj":"Sentence"}],"attributes":[{"subj":"T1","pred":"source","obj":"PMID_GLOBAL"},{"subj":"T2","pred":"source","obj":"PMID_GLOBAL"},{"subj":"T3","pred":"source","obj":"PMID_GLOBAL"},{"subj":"T4","pred":"source","obj":"PMID_GLOBAL"},{"subj":"T5","pred":"source","obj":"PMID_GLOBAL"},{"subj":"T6","pred":"source","obj":"PMID_GLOBAL"},{"subj":"T7","pred":"source","obj":"PMID_GLOBAL"}]}],"config":{"attribute types":[{"pred":"source","value type":"selection","values":[{"id":"PMID_GLOBAL","color":"#93e8ec","default":true}]}]}}