PMC:7534733 / 13586-16473 JSONTXT

{"target":"https://pubannotation.org/docs/sourcedb/PMC/sourceid/7534733","sourcedb":"PMC","sourceid":"7534733","source_url":"https://www.ncbi.nlm.nih.gov/pmc/7534733","text":"Items That Are Essential to Have for an ILD Clinic Items That Are Important to Have for an ILD Clinic\nMembers of the ILD team\n Physicians\n Having expertise in ILD (a certain number of years working in ILD patient care)\n Having at least 2 or more pulmonologists working the ILD clinic\n Nurses Dedicated ILD nurse\n If a clinic has advanced practice providers\n Close supervision by physicians\n Their role should be mainly longitudinal care of ILD patients\n Research coordinators Clinic coordinators\nFellows and trainees\nInfrastructure of ILD clinics\n General\n ILD clinic sees a minimum number of patients per year\n ILD clinic sees a minimum of 100 unique patients/ya\n Minimum number of clinics per week\n Ease of access to clinic\n Triaging and rerouting referrals to ILD clinics from general pulmonary clinics\n Triaging of ILD patients before new patient visit to avoid multiple visits (prescheduling tests before the visit, obtaining prior records and imaging, and so forth)\n The maximum time from referral to new appointment is less than 2 mo for a standard new patient visitb Maximum time from referral to new appointment is less than 7-10 d for an urgent patient visit\n Patient management strategies\n Providing a mix of primary management, collaborative/shared care, and consultative management Providing primary management of ILD care\n Exposure history\n Obtain a structured occupational and environmental exposure history for all new ILD patients\nResources for ILD clinics\n Pulmonary rehabilitation\n A pulmonary rehabilitation facility in close proximity (within a 30-60-min drive from the center) to the ILD clinica\n Ancillary services within the same institution\n General rheumatology Access to rheumatologists with expertise in ILD\n Thoracic radiology Access to sleep clinic\n Pulmonary pathologya\n Thoracic surgeon\n Pulmonary hypertensiona\n Cardiology\n Palliative care\n Experience in treating patients with advanced lung diseases\n Availability in outpatient, inpatient, and hospice care\n Pulmonary function testing\n Same-day appointments as the ILD clinic visit\n Radiology\n Dedicated ILD HRCT protocol\n HRCT available same day or next day of clinic visita\n Research\n Participation in research\n Participation in clinical trials\n Participation in patient registriesa\n Patient education\n Patient education is delivered by physiciansa\n Patient education is delivered by nurses\n ILD clinic participates in local patient support groups\nMultidisciplinary conference\n Having a multidisciplinary conference Frequency is at least once/2 wks\n Staff (routinely participates in ILD conference)\n Pulmonologists Trainees\n Radiologists\n Pathologists\n Discussing the following types of patients at multidisciplinary conference\n Complex cases with diagnostic or therapeutic dilemmas\n Patients who already have undergone surgical lung biopsy\n Patients in whom a surgical lung biopsy is being 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