PMC:5917327 / 6949-9539
Annnotations
{"target":"https://pubannotation.org/docs/sourcedb/PMC/sourceid/5917327","sourcedb":"PMC","sourceid":"5917327","source_url":"https://www.ncbi.nlm.nih.gov/pmc/5917327","text":"Data collection\nSupported by an instruction manual, patients made a video once a fortnight [15]. Once a month, a research assistant visited the patient with a two-fold purpose. On the one hand, the visit was used to collect the patients’ videos, allowing the researchers to get a verbal and non-verbal impression of the physical and mental state of the participating patients. On the other hand, the assistant would ask the patients if they had encountered a change in care, naming some exemplifying changes (Table 1) and stimulating the patient to tell more [15].\nTable 1. Changes in care named as an example during the visits of the research assistant.\nChange in care\nA change in the extent of domestic help that is providedA change in the extent of personal care help that is providedA domestic adjustment (such as a bracket on the toilet or shower)The purchase of a specific tool (such as a walker or adapted cutlery)A modification of pharmacotherapyThe involvement of a healthcare provider (including, for example, a physical therapist or a speech therapist), who was not involved beforeConsultation of the GP or medical specialist, if not part of routine follow-upAdaptation of working hours or type of workAdmission to specialised day care or hospital If patients had experienced a change in care, they were interviewed face-to-face in their own home by a skilled interviewer (AP), who had no professional relationship with the patients. A brief topic guide based on expert opinion was available with core questions and optional prompts. This guide was tailored using specific individual information from the patients’ videos, which were not analysed in further detail (Table 2). Interviews were recorded and fully transcribed.\nTable 2. Semi-structured interview topic guide (initial versiona).\nCan you describe the change in care that took place?Can you tell me about your experiences with this change in care? How did you experience it? Can you describe if anything or anyone influenced your experience? And, if so, how did this influence your experience?Can you tell me about your coping with this change in care? How did you cope with this change in care? Why did you cope with it this way? Can you describe your considerations? Can you describe if anything or anyone influenced your coping? And, if so, how did this influence your coping?\na The guide was adapted as the study proceeded; information from the patient’s videos was used to tailor the guide for each interview. More detailed information on recruitment and data collection can be found in the study protocol [15].","divisions":[{"label":"title","span":{"begin":0,"end":15}},{"label":"p","span":{"begin":16,"end":564}},{"label":"table-wrap","span":{"begin":565,"end":1259}},{"label":"label","span":{"begin":565,"end":573}},{"label":"caption","span":{"begin":575,"end":655}},{"label":"p","span":{"begin":575,"end":655}},{"label":"table","span":{"begin":656,"end":1259}},{"label":"tr","span":{"begin":656,"end":670}},{"label":"th","span":{"begin":656,"end":670}},{"label":"tr","span":{"begin":671,"end":1259}},{"label":"td","span":{"begin":671,"end":1259}},{"label":"p","span":{"begin":1260,"end":1735}},{"label":"table-wrap","span":{"begin":1736,"end":2488}},{"label":"label","span":{"begin":1736,"end":1744}},{"label":"caption","span":{"begin":1746,"end":1803}},{"label":"p","span":{"begin":1746,"end":1803}},{"label":"table","span":{"begin":1804,"end":2352}},{"label":"tr","span":{"begin":1804,"end":2352}},{"label":"td","span":{"begin":1804,"end":2352}},{"label":"table-wrap-foot","span":{"begin":2353,"end":2488}},{"label":"footnote","span":{"begin":2353,"end":2488}},{"label":"label","span":{"begin":2353,"end":2354}},{"label":"p","span":{"begin":2356,"end":2488}}],"tracks":[]}