Item Result
Members ...
 No. of ILD-focused pulmonologists working in the ILD clinic ...
 1 2 (6)
 2-5 24 (67)
 > 5 10 (27)
 Nursing support for the ILD clinic 33 (92)
 Nurses who are dedicated solely to ILD clinic (in the clinics with nurses) 18 (56)
 Advanced practice providers working in the ILD clinic 18 (50)
Infrastructure ...
 New patient visits per y 250 (150-383)
 Total patient visits per y 1000 (500-1,500)
 No. of half days of ILD clinic per wk 7 (4-8)
 Average wait time from referral to clinic visit ...
 1 wk-1 mo 15 (42)
 1-3 mo 16 (44)
 3-12 mo 4 (11)
 Unknown 1 (3)
 Most patients traveling > 60 min to get to clinic 19 (53)
 Use of telemedicine 3 (8)
Resources ...
 Access to social worker 11 (31)
 Access to respiratory therapists 24 (67)
 Access to a palliative care program 33 (92)
 Access to a dedicated ILD palliative care program 3 (8)
 Access to a local pulmonary rehabilitation program 36 (100)
 Access to a local support group 36 (100)
 Participate in clinical trialsa 35 (100)
 Participate in patient registries 32 (89)
 Participate in biobanking of specimens 31 (86)
Multidisciplinary conference ...
 Participation in a multidisciplinary conference 35 (97)
 Frequency of multidisciplinary conference ...
 > Once/wk 1 (3)
 Once/wk 17 (49)
 Once/2 wks 9 (26)
 Once/mo 8 (23)