Table 2 Explanations of being satisfied with the treatment choice
N column (%) Total (n = 118) N (%) Satisfied (n = 92) N (%) Not satisfieda (n = 26) N (%)
Relatives mentioned: b
• Only positive aspects 47 (42) 42 (48) 5 (20)
• Positive and negative aspects 35 (31) 26 (30) 9 (36)
• Only negative aspects 31 (27) 19 (22) 11 (44)
Positive aspects mentioned
• We tried everything 28 (24) 22 (24) 6 (23)
• It was the patients’ choice 17 (14) 11 (12) 6 (23)
• Lived longer 16 (14) 15 (16) 1 (4)
• The treatment worked 14 (12) 11 (12) 3 (12)
• No side effects 12 (10) 10 (11) 2 (8)
• It gives hope 10 (8) 7 (8) 3 (12)
• Good quality of life 6 (5) 6 (7) 0 (0)
• Other 3 (3) 3 (3) 0 (0)
Negative aspects mentioned
• The treatment didn’t work 23 (19) 17 (18) 6 (23)
• Side effects 15 (13) 11 (12) 4 (15)
• It was not my choice 12 (10) 5 (5) 7 (27)
• Quality of life worsened 10 (8) 3 (3) 7 (27)
• Treatment was given too long 9 (8) 4 (4) 5 (19)
• Burdensome hospital visits 5 (4) 3 (3) 2 (8)
• The treatment was started too late 4 (3) 4 (4) 0 (0)
Other aspects mentioned
• Good quality of care 19 (16) 19 (21) 0 (0)
• Insufficient quality of care 15 (13) 9 (10) 6 (23)
• It was the choice of the oncologists 13 (11) 11 (12) 2 (8)
• I don’t know how it would have been otherwise 7 (6) 3 (3) 4 (15)
• It helped science 3 (3) 3 (3) 0 (0)
aIncluding relatives who reported “not sure” on the treatment satisfaction. b 4% missing. Percentages don’t add up to 100% since more answers were possible