Education
A study of patients with multiple sclerosis (MS), for example, showed that patients have more positive experiences with changes in care if they better know what to expect of their disease and treatment strategies [25]. As this can help patients with an unpredictable disease such as MS, the same might be true for patients suffering from the progressive disease with fluctuating expression that PD is [27]. PD patients expressed the need for education on the disease and treatment strategies before [26,28]. Our study adds to this by showing that education on possible solutions that fit into the patient’s context can help community-dwelling PD patients handle the changes in care that will inevitably occur during their disease. To anticipate, to initiate and to independently handle care changes, will contribute to PD patients’ resilience and their experienced quality of life and health [20,23].