Chronically ill patients will face changes in care at some point in the course of their disease. Patients with Parkinson’s disease (PD), for example, suffer from motor symptoms and a wide variety of non-motor symptoms [1]. The fluctuating expression of symptoms and progression of the disease frequently force PD patients to adapt to new impairments and disabilities [1]. Some of these disabilities will necessitate changes in care: transfers of patients between different levels of (non) professional care within the same setting or between different (healthcare) settings [2,3].