Quote related to the ability to act independently
• Q3.1 ‘Nowadays I take my medication more knowingly, taking into account that if I take my medication now, I’ll have my ‘low’ in two hours’ time. I have the feeling that I am less affected by it because I manage the situation. […] It’s the feeling that you’re the master of your own fate’ (Male, 76 years, H&Y 2).
Quotes related to the inability to act independently
• Q3.2 ‘Sometimes I’m angry that I’m no longer able to do it myself. […] At those moments, I have the feeling I should still be able to do it. Yes, it makes me sad’ (Female, 58 years, H&Y 1.5).
• Q3.3 ‘It’s hard to be dependent. I am not used to needing help. […] I prefer doing things myself. When you need help, it means you depend on other people’ (Male, 65 years, H&Y 1).
• Q3.4 ‘I think that’s a matter of embarrassment again. What will she [my neighbour] think of me? Will she think that I cannot do anything on my own anymore? […] I do not have that with my husband, because he is so familiar. […] When I ask my neighbour, I feel like I’m a whiner’ (Female, 58 years, H&Y 1.5).
• Q3.5. ‘If you can do it yourself, you can do it whenever you want to and in your own tempo. […] Now, I am more or less obligated to wait until he [my son] has time to do it [offer help]’ (Male, 59 years, H&Y 1.5).
Quotes related to acting together
• Q3.6 ’During the consultation with the neurologist we decided together to change the medication dose’ (Female, 70 years, H&Y 4).
• Q3.7 ‘I don’t want to do that [make the decision]. […] In my opinion, when a healthcare provider [neurologist] tries to help you, you should just listen and do what he says’ (Female, 75 years, H&Y 1).