Quote related to the inability to anticipate • Q1.1 ‘I had the idea that Parkinson has caused my complaints…I told him [the GP] 10 times: “That is what I believe.” …but he persisted and then I had to go to hospital’ (Male, 67 years, H&Y 1.5). Quote related to the ability to anticipate • Q1.2 ‘Well, it [encountering a change in care] isn’t difficult. […] I know it is a progressive disease. […] I anticipate’ (Male, 63 years, H&Y 2).