Table 3.  Characteristics of the participating community-dwelling patients with Parkinson’s disease – including oversight of the experienced changes in care.
Patient Code (A–J)  Sex  Age at start study (years)  Severity of disease at start study: mild–severe (H&Y stage 1–4)  Experienced change(s) in care (each line represents a separate interview and shows the discussed changes in care)  Follow-up period (months)
A  Male  65  1  Modification of PD-related pharmacotherapyDomestic adjustment  12
B  Female  58  1.5  Purchase of a toolChange in unpaid careDomestic adjustment  12
C  Male  59  1.5  Change in unpaid care  12
D  Male  76  2  Modification of PD-related pharmacotherapy (adverse effects)  12
E  Male  63  2  Purchase of a toolDomestic adjustment  12
F  Male  67  1.5  Acute admission to hospital, modification of PD-related pharmacotherapy  12a
G  Male  65  1.5  Involvement of a speech therapistConsultation of GP, consultation of neurologist, modification of PD-related pharmacotherapy  12
H  Male  79  4  Acute admission to hospital  12a,b
I  Female  75  1  Consultation of GP, planned admission to hospitalConsultation of neurologist, modification of PD-related pharmacotherapy  6
J  Male  73  2  Domestic adjustment, modification of PD-related pharmacotherapyConsultation of neurologist  6
K  Female  70  4  Consultation of GP, consultation of neurologist, modification of PD-related pharmacotherapy  6
L  Male  72  2.5     6a
M  Female  70  1     6
N  Female  64  2.5  Modification of PD-related pharmacotherapy  6
O  Male  65  1.5  Consultation of GP, ENT specialist and neurologist, modification of pharmacotherapy (laxative)  6
P  Male  72  2  Consultation of neurologist, consultation of GP, modification of pharmacotherapy (laxative)  6
a  Did not finish follow-up.
b  Deceased during follow-up.